Ms symptoms but all tests negative reddit. Brain MRI was clear as well as every blood test I’ve had.

  • Ms symptoms but all tests negative reddit 9 Let’s say the blood tested negative for all differential diagnoses. I think I’m nervous about the appointment because I’m afraid I will not be taken serious. I do have moments of clarity though, where I try to think “logically” about how rare MS (and especially ALS!) is. I also had a CT, which came back clean except for evidence that my lymph nodes are MS is diagnosed via a number of tests, including imaging, but first and foremost requires an examination by a neurologist (assuming the GP doesn't have an adequate reason not to refer What test are you using? My 6 week old gave me 3 negative tests, all from a 3 pack of 1st response tests. 23 y/o female. Third time now. All So out of a deadlock, we reached a compromise: I told her that I wanted an appointment with a gastroenterologist and subsequent tests of the intestine. thought I was a hypochondriac and told me for decades that I didn&#39;t have MS even though I had relatives with MS and ALS. She just had some symptoms that could be associated with pregnancy but showed up negative on test. But yeah even with my Crohn's in remission I continue to have all the same symptoms. My symptoms are chronic pain, muscle stiffness, muscle fatigue I have been having symptom like MS but my MRI shows negative. However, for one lupus specific test (Avise CTD), I scored a I had no physical symptoms of being pregnant at all until about 7-8 weeks, and that was only mild food aversions. MRI showed many lesions. But those are all classic symptoms. Hi friend. Is it covid or not? I don't know what to think anymore. Your test results would be negative in my opinion. All of my google-fu failed to find anyone else with an isolated positive like this, so When asymptomatic, rapid tests are somewhat inaccurate. The doctor also has MS himself apparently so we’ll see what happens. However I can't explain the testicle pain. I had early symptoms, and I was convinced it was my period, but i was pregnant. I don’t have any other symptom and no lesions at all in my brain. However I have noticed red possible inflamed skin on the shaft and head of penis, including patches of Red skin here and there. Just got a young, female Rheumatologist who said, "yeah, this is RA with an unusual presentation. Knees, that's another one. These symptoms also seen in fibromyalgia or other type of neuropathy. I was totally negative for all, so I am so curious. This person has no symptoms when we interacted. Both negative. Having a medical issue? Ask a doctor or medical professional on Reddit! All flaired medical professionals Of course it’s important to rule out known potential causes like MS for your symptoms, but most longhaulers who develop MS-like symptoms don’t have MS. MS is a really hard thing to diagnose, and typically wouldn't present with something so quickly onset as the 5-8 seconds episode, with replases having to last at least 24hr to be diagnosable as a relapse (in Relapsing Remitting MS) - and the thing wth MS is you can have, essentially any, neurological symptom dependent on the locaton of the possible leision in your neurology. When having an MS flare up, usually that numbness wouldn't come and go but would last for many days, or more likely, for weeks and months. If you do indeed have MS you will probably have symptoms that end up lasting several days in a row. and I am starting to feel worried that something could be wrong. See if you can at least get a CT scan or MRI. I’ve had major nerve pain issues and other skin sensations as well as occasional balance issues and other MS-similar symptoms. She has also not missed her period yet. I'm curious about what your earliest symptoms were from MS, and how to get diagnosed or at least get checked for it. Negative for all and negative ANA. Exactly one week after contact, I started having similar symptoms to that of my one positive run with COVID. But i thought my first symptoms started in 2020. " My doctor said she didn't want to scare me with the positive ANA test and that it "didn't necessarily mean it's Lupus", but didn't really get into what it could be, nor did she reveal the numbers involved with the test. Dx took 3 If you hadn’t mentioned all the negative tests I would’ve suggested pregnancy too. The first round of tests came back negative for both of us. 3 days later of symptoms, I have not improved, and I've taken 4 rapid antigen tests, all 4 negative. Depending on your symptoms you could have fibromyalgia. Since antigent test is a qualitative test (positive or negative results only), the manufacturer verification process does not test the strength of the test result is equivalent of antigen levels. I know they don't test for it unless you ask! My other suggestion is finding a pelvic floor physical therapist for an evaluation. It has taken me years to find a rheumatologist that did not dismiss my symptoms because my bloodwork was all negative. I have a tingly face, but not limbs. Keep working with One weird symptom you may have heard about is the dreaded MS hug. It may be extensive, but I have done 10 tests till now at different stages of the delay, all of which are negative. Other common symptoms associated with MS include Optic neuritis was my first diagnosed symptom--i lost vision in my left eye. MRIs: brain (Jan 2022), cervical spine, thoracic spine, lumbar spine. same boat ! i took a plan on day 4 of my last period, bled/spotted longer than normal ( i bleed 5 days) but lasted like a week and two days. She has taken two pregnancy tests so far, (First response) and both times were negative, and the first test was taken 6 days AFTER she missed her period. Around this time I also took an Oraquick at home test, and that was negative. It takes about two weeks after sex to become pregnant, so the negative tests mean you aren’t pregnant from sex that occurred more than two weeks before the tests. Unfortunately, just like the Western Blot that you tested negative to, stool tests are notoriously unreliable. Have symptoms and other blood issues that mimic lupus. The only test that is consistently too high is my cortisol, but no doctor has ever mentioned that this is a problem (they always attribute it to me being on the pill). I don’t know if I should continue and test again in a couple weeks- I read that 9/15 women test negative till 7-8weeks or if I should go ahead and move on and get back on birth I really hope you get the all clear. I return a third time feeling like a fucking liar. Definitely get an MRI to try to rule out MS for peace of mind, but also know that it's entirely possible that all of your symptoms are from fibromyalgia. Positive ANA 1:1280 speckled, homogenous, but negative DsDNA. Started seeing a new neurologist who ordered all the other tests. Negative rapid test in the afternoon 12/25: symptoms worsened, went to the clinic and got a PCR test that turned out to be positive Hi all I’m a 21 year old male and I’m worried that I could have ms. Some of us have had very mild symptoms, nothing serious and today we are all fine. I’ll say that I never had anxiety prior and maybe developed it with my scare. possible it would show up negative because did not miss period yet? Also no idea when conception could have happened. See reasons this might happen. The main test, if you have lesions and symptoms, is a lumbar puncture - if you get oligoclonal banding in the CSF the that can act as a positive diagnosis. TLDR: I tested IgG positive on a Lyme test (not confirmed by immunoblot) 1 week after a tick bite, with terrible fatigue as a symptom. Fouth set of tests. If all of these tests show normal blood sugars, you should see your doctor about your symptoms anyways, as they are worrying. so I’m not sure. Listening to Barry Singer, MD’s podcast on the symptoms that happen years before the first neurological symptoms of MS where people have “symptoms that are often overlooked. Get a fork. I took a PCR and am waiting on results. Hi all, I had sex with a girl, got tested, came back negative. I’ve had high levels of anxiety for the last 6 months which is the only thing making me think it’s not. They tested positive. Additional testing may be needed. but honestly my symptoms didn't really line up with yours, except for loosing weight (I lost a lot I feel content with the diagnosis, as I know I match close to all the symptoms and a good amount of my blood work can support it. Also, psychosomatic symptoms are definitely a thing. But in the MOMENT that you test negative, your viral load is likely too low to spread it barring extreme circumstances. Rheumatologists say there is nothing else to support other AI conditions and the positive ANA is not clinically significant. Based on the clarification in the question, So if you’ve gone to the doctor and all of your tests, come back negative. That said, for many people their CIS won’t lead to MS. Sure thing. Now that I see so many of you have tinnitus I think it might be time for me to find a new Neuro. 5,11,12,14 and 16 weeks after the incident all negative using a combination of testing methods including 4th generation duo test. My period didn't come in. I know PMS symptoms are basically the same as pregnancy symptoms, but I never feel strong symptoms like this when I am just PMSing. Brain MRI is often used to help diagnose multiple Dropping one side of face, hand didn’t work, couldn’t write, walking crooked, slurred speech, weakness. Get Thankfully my Neuro prescribed Gabapentin and it literally saved my skin! Copied this info below from Google as info (sometimes I find it reassuring to know these weird symptoms actually have names. With expired tests and being asymptomatic false negatives are more likely than false positives. If they haven't already, with being on Tysabri, they should test you for something called the JC virus. i spotted shortly after i “ovulated” for two days, then expected my period to come. The symptoms went away after a few days so I didn't go to the doctor. I appreciate your response! It would be called “radiologically isolated syndrome” if I didn’t have any symptoms, but since I was experiencing MS like symptoms they didn’t have a name for it. Now we usually use condoms but on the 1st of this month we did not and I finished inside her, but we did use spermicide. " With my first I tested positive at 3. Myself and the people I’ve spoken to have So if you’ve gone to the doctor and all of your tests, come back negative. My same boat ! i took a plan on day 4 of my last period, bled/spotted longer than normal ( i bleed 5 days) but lasted like a week and two days. But I am still experiencing symptoms that make me think I have HIV: -itchy rash on legs I look young and healthy on the outside, but my health is failing. Yeah your symptoms sound like what I had my entire life. They're used to identify other causes, if negative it might be MS or one f the many other possibilities. My main symptom would have to be vibrating legs that come and go, or little stings that randomly happen around the body and also palpitations. U of M was the health system that finally agreed to see me. 3) I will definitely try and find an expert who specializes into So as the title says, my period hasn’t come yet but I’ve take a few of pregnancy tests and they came out negative. If you don’t have a period next month I’d definitely contact your OB to see what’s going on. Pelvic Floor Dysfunction (PFD) can be triggered by a UTI, stress, sex, injury, general bone/muscular structure, and can New Covid doesn’t show up on tests as fastthe one that hit our office started with tummy/vomiting then the standard stuff, everyone tested 3-4 days in, negative, then after about the 6th day of symptoms everyone tested positive. I took DNA Connexions and had 4 strains of Lyme & his coinfection buddies. Then i remembered hiking trips from college I've been suspecting that the tests are less than perfect. Tests: Blood work has been done countless times. My urologist didn't seem to think those tests were available. The best way to prove that there is an issue is by symptom tracking with a symptom journal and photos. 18 months later I’m sitting at work in the call center and bend my head down to look at the keyboard and I got What are your symptoms that aren’t listed under descriptions of MS, or ones that your neurologist thought was odd? I’ll go first. I repeat: it’s just a formality. Bro the same thing happened to me I had a bunch of symptoms right and I took four hiv tests 4th gen tests one in October one in November one In December on in April and all 4 came back negative but I still have the symptoms for like 10 months now since September of last year but the doctor is confident I don’t have it but my mind sometimes drifts back to it again and I start the They said they don't think it's MS related, because MS bladder issues often come together with other stuff in a full on relapse (not sure if that's true). The end result is Multiple sclerosis (MS) occurs when your immune system malfunctions and attacks the fatty tissue (myelin) that insulates nerve fibers within your brain, spinal cord, and Those symptoms include loss of vision in an eye, loss of power in an arm or leg or a rising sense of numbness in the legs. Yes, the antigen test could suddenly be negative. At this point I’ve been living with this since for sure January 2018 and I haven’t been able to figure out what it is. But IF they are MS, there are treatments now that can be hugely helpful in preventing/delaying onset of severe symptoms for years, decades. I’m not a doctor, so I don’t want to mislead or misspeak on your particular symptoms. I have not yet started medication for chlamydia. We all got PCR tests, I was negative each time (I took two tests a week apart). One cousin had no lesions for MS but tested positive for it after the spinal tap. I'd give it 3 more days (and if the symptoms return, you have to restart the calendar, which sucks, but it sounds like you're probably over it). M8 thanks for the link and the thought and correct me if I’m wrong but that all talks about the affect of marijuana on the symptoms of ms, this is exactly what I said I didn’t want, I want to talk about the disease itself and not the symptoms, and I did say the answer I don’t know is an acceptable answer, the answer no because i don’t Ms-like symptoms but my neurologist doesn’t believe it is. Just got the results and it's positive. Brain MRI was clear as well as every blood test I’ve had. Then they saw the lesions. I even went in to the dr and had both urine and blood tests done, which both came back negative (i was 5 wks along at the time). I have also noticed a divit forming with a little white coloration on the inside of the urethra. I’ve been constantly worrying about MS for the past month and a half. Many people I went To the rheumatologist and she explained that sometimes people can test a false negative so she did a second round of bloodwork and my ANA came back Positive again but this time I took a pregnancy test at 36 days, and another at 42. I further told her that if all of the A person at my work used 2 rapid tests after they were exhibiting symptoms and both tests were negative. Severe back pain, Headache, Fever, Fatigue, Upset GI, Lack of appetite, Nausea, Insomnia, Elevated heart rate, Feel of “buzzing” in my body, I was so shocked when my pcr test came back. If the symptoms happen again, this will lead straight to a diagnosis of MS. Results showed everything was normal. I have had a few blood tests from the ages of 13 - 29, including a full celiac panel this year. But with so many negative tests it just seems that maybe there’s something else going on. Flu test was also negative. I know a few people personally who have the same symptoms as us that tested negative , including one person who was exposed with me by same person. For the record, I have done every test available over the last few months since I finished Mino in September: the Hologic/Aptima NAAT swab and urine tests (first void urine, 3x, all negative); Quest Diagnostics PCR urine tests (3x, all negative); MicroGenDX prostate/semen STI 2016 brain MRI - no lesions 2015 negative celiac test 2022 negative ANA test 2024 normal bloodwork 2024 brain and spinal mri - no lesions 2024 EMG of left leg - normal Family history: MS in mom, multiple uncles and aunts and cousins. So once again I want to clarify that I was looking for theories, stories and opinions, like one does on Reddit. "People should self-isolate if they have Covid-19 symptoms even if they have a negative PCR test result, according to a regional public health official, after a number of cases where people tested positive using lateral flow tests – but then negative with PCR. With that said, a PCR test would be best indicator since an expired test isn’t recommended by FDA if possible Mine come and go. Swab was complete and her test was negative. Could I have internet cysitis too? I'm getting desperate for any help or lead. Anyway, it's been a week since then and I still haven't heard anything from the lab. I later had a brief onset of double vision when looking to my left, but MS wasn’t mentioned then either and it resolved on its own after a month. I have nail dents, but not brittle nails. Oligoclonal bands, in particular, also have the interesting issue that the test standards vary slightly from place to place. I had fatigue and a scratchy throat. I thought I just had the flu. If you have MS, you still might not have tested positive in all the MS tests. On his website he says most of his patients have symptoms like mine & many who come to him have already received negative blood work for Lyme before they get retested with specialized tests and treated by him. I had a lot of strange symptoms that were vague and neither myself nor my doctor ever thought it was related to MS. So he said they were silent migraines and sent me on my way with a 6 month trial of epileptic medication. I can totally see what you are describing as a symptom of MS. About two weeks after the stripper incident went to see a doctor. I also was worried because I have never missed a period and was worried something else was going on after my negative test. my Lyme tests were neg. People on r/CUTI often say that asking for a ureaplasma test is a good next move when you have a negative UTI test but continued issues. One likely MS symptom about 10 years before diagnosis was difficulty swallowing. I think none of us would mind more love and positivity. I’ve been ran through every test except MRI and spinal tap looking for answers. When I got pregnant with my second (not quite as soon but at 12 months) I tested a few times when I was first late and they were all negative. I don't eat much meat, but there's plently of dairy and eggs in my diet, I eat at least some processed meats several times a week, and I've been having worsening neurological symptoms for years. (I used two different brands as well) I could totally just be making up things My dad has celiac (confirmed by blood test and endoscopy many years ago). My doctor and I were suspicious about MS because I was having neurological symptoms but then when the test for celiac came back positive, he told me that all my neurological symptoms were attributable to celiac and they should go away when I stopped eating gluten. Even though my In young women, symptoms are actually a better test for a UTI than a urine test. It’s awful. I too am curious what we will learn moving forward as far as the connection between Covid and positive ANA. I would change neurologists if it were even an option where I am. They both worked from home regardless to not spread what they had. 22 days finger prick test negative. I seem to be able to find reference to all of my symptoms online as occurring in MS, but my MS specialist neurologist always seems to think things are unrelated. Or worsening symptoms. Had blood and urine tests for HIV, Hepatitis A, B, C, Syphilis, Chlamydia, Gonorrhea – all came back negative. I was informally diagnosed with MS initially because I had all of the symptoms and the same type of flare. She got tested, came back negative. My period still has not come but another negative test. So I have all the symptoms and there was a day that could have possible been a conception date. If we have someone come in with UTI symptoms we just give antibiotics because there's nothing to be Two months ago both my partners tested positive for COVID at the same time. If there are lesions on the MRI, doctors will likely It’s a scenario many people with MS go through at some point: you have worsening symptoms but no change to your MRI. The tinglin What ended up happening? i'm doing some reddit googling for similar issue and curious if they are even able to test for Mycoplasma or these other bacteria. I have tested 4 times with insti rapid test and all have come back negative. In all, I took 5 home tests and had 3 tests at the dr's office (2 urine, one blood). But due to the preliminary positive 4th gen vein drawn lab test There were also tests for concentration & memory where I did really good on, because well med school drills that stuff into you lol. Visual Evoked Potentials were abnormal. I even went through a summer of MS hug, I didn&#39;t know what it was then. All within range, no sign of diabetes. Tests were taken two days before miscarriage and a week before the first test. It’s been 2 weeks since your negative test? I’d start by taking another one. My LP was “negative” (3 oligoclonal bands, when the threshold for MS is 4), 25-30 T2 hyperintensities scattered on brain (nonspecific, not necessarily indicative of MS on their own), one cervical lesion ( transverse myelitis) After a second opinion I did get an MS diagnosis, factoring in all the results and my presentation of symptoms. You can test negative AND THEN (even as short as ~12 hours later) be contagious. That should be able to find inflammation. I’m just fatigued with sicca symptoms in between, but during flares I get numbness on half of my body, fevers, brain fog, and incontinence. And all types of test have false negatives: rapid antigen tests (the comon ones), polymerase chain reaction tests (the best ones), and nucleocapsid antibody tests The good news is, all of the tests were done that rule out anything that could be a risk to your life. It’s literally the standard protocol for when a suspected celiac tests negative for Ttg-IgA. I tested negative for all common STDS including syphilis and gonorrhea with a blood and urine test. I went to a clinic and they did a rapid test, also negative. These were things like severe fatigue, vertigo, overactive bladder, cognitive fatigue after several hours (I would be fine in the morning, then found it difficult to think as the day went on), anxiety and depression (could be unrelated however). I’m going to an MS specialist for a second opinion on Wednesday. My biopsies were negative as well despite servere symptoms, and the first neurologist I saw who did the biopsies intitially told me they were negative so he had no further recommendations. This was But eventually the referral came back around to a different neurologist than I had seen previously, who started the next round of tests including a lumbar puncture, the eye test, and MRIs with contrast. There is plenty of negativity out there and I don't desire feeding into that. He previously thought I didn’t have MS but a rare diseased which was ruled out by not having the antibody for it. I was tested for chlamydia, gonorrhea, syphilis, hsv1/2, and HIV. With CIDP, the symptoms are very similar to MS, but all the damage occurs in the peripheral nervous system. So, what's happening here and what should someone do? Testing—including an MRI—should reveal whether it is truly MS, a condition at high risk of developing into MS, or something else entirely. My question, after all this rambling, is that I see my symptoms tend to fit more into MS than Lupus or many of the other MS is just weird like that, and none of the individual tests are unambiguous. I’ve been seeing a neurologist that specializes in MS and she has been at least understanding and said I probably have some minor MS like disease that they just don’t have a name for yet. All of my google-fu failed to find anyone else with an isolated positive like this, so <p>My story is real similar to Lisa P, I had symptoms off and on since I was 24. I’m hearing a lot of people are showing symptoms of their autoimmune disease after getting Covid. I can see from the mirror how swollen I am and the test hurts so much that i'm nearly crying. exact same here, although we’re stuck between classical and hypermobile EDS until/unless I decide to do the genetic testing. I currently have hashimoto's, which a lot of the times can be coupled with MS, and I have been experiencing something that I think may be described as an MS hug for about a year now. And then go away. I'm not saying this is what you have, but I would definitely check into it, and if your neuro isn't open to considering it, I would get a second opinion. I think negative results are more common than I think Try swabbing your throat instead. Last September (Sept 2016) started having cognitive I tested positive on a rapid test on Sunday. " The specialist referred by the NHS diagnosed me with MS saying the lesions are really tiny in my cervical spine and he found some bands in my AQP4 test. We have no way of telling whether or not OP has an IgA deficiency from antigen-specific antibody tests. She tested a very weak positive on one home test, immediately did like 4 more all negative, and then continued to test negative for the next week. I have tested for HIV at 4,5,6,7,8,9. That was my first diagnosis when I developed this pain. Basically, my ANA is negative, but I have other autoimmune markers for Sjogrens and another autoimmune disease, along with It all lines up, she cheats on me before the trip, gets symptoms, we go on trip, her and I have sex, I get symptoms. I have lots of neuro symptoms but all my tests have come back clean. How can it seem so CERTAIN that a patient has something like MS based on the presentation of symptoms, but then all tests come back negative because it’s psychosomatic? Hi all, I’ve been having what looks like an initial genital herpes outbreak and I’m just about to finish my 4th weak with no signs of it easing but i’ve tested negative for both blood and PCR tests. Test results, again, all negative. Try another neurologist. View community ranking See how large this community is compared to the rest of Reddit. Might try a stool test to figure out if you have any of those guys. Around a month after the initial test I went in for another appointment and was retested for Chlamydia, Gonorrhea, Syphilis, Hep C, HIV, and a UTI which all came back negative. I have the severe reflux too. Each of us did rapid tests and my parents also had pcr testingall negative. Since mid If they aren’t available or are too expensive, I would recommend purchasing the Metrix molecular reading and tests. Now, the tests for all the specific antibodies for the various autoimmune diseases are in--all negative, and I feel like I'm back to square one. My point is every symptom can be a HIV symptom so it’s pointless to diagnose yourself through symptoms. I have rheumatoid nodules all over my body and have had for 20+ years. Yes, they could be other things. I didn't know about Chairi either until I I don’t think you have HIV and your multiple tests are negative, but to be formally correct you can repeat (without any kind of anxiety) the 4th gen. Staying hydrated really helps and basically just knowing that my bladder needed time to heal after infection is useful. Any body twitches and I immediately think parasites. Wait till the other tests come back. Relatively healthy most of my life. I had a battery of tests, including barium swallow imaging, and the diagnosis was "esophageal spasm. Really? I've had MS for 10 years and I was convinced the EBV shit was 100% true. I feel conflicted. Maybe there weren't enough I have a very obvious reaction to oats (nausea, extreme nasal congestion, burning mouth) but a negative skin test. Testosterone maybe on the lower end but the doctor said not enough to give me testosterone therapy. Don't Others won't diagnose anything and just give you the runaround or order worthless tests. 8 years later she’s never had anything look remotely close After our initial issue. I saw someone suggest swabbing the throat instead of the nose so I tried it and the positive line lit up like a Christmas tree. My symptoms were similar to yours . Just cut to the chase and test for IgA deficiency. Does being sick normally make all your MS symptoms worse? I went to an outdoor concert and am Covid negative, but I either have nasty sinuses lingering from the concert or a nasty cold. Came out negative for MS. But BF and I still couldn’t calm down, so we finally went to the doctor yesterday and got my blood work done to find out for sure. We know too much now about MS for you to be sent away to "wait until visible lesions show up. symptoms first appeared in beginning of may, so im unsure why i would test negative after nearly five months unless ALL my tests were faulty but at this point im - for 1 blood and - for 2 swabs. I didn’t think at all about MS until I tried a new urologist about 2 years after my symptoms had started and he mentioned it as a possibility in our first appointment. I was worried that my hyper focus and/or stressing about it made my period late instead of it being because I was actually pregnant. Then when gathering all my medical info when i was trying to get diagnosed i remembered that i had some unexplainable pain in my joints earlier too so then i said my symptoms started in 2018. I know of two colleagues who were sick with what sure sounded like omicron but all their tests (both rapid and PCR) were negative. For some reason I didn't test positive until a few days after my period was supposed to come so was confused. Night sweats and dry mouth every other day. Marginal results are usually reported as positive in most of Yes. Met with a neurosurgeon (for a brain cyst) and she also believes it’s MS. After I got out of isolation I was told not to test for 3 months because PCR tests can't tell the difference between dead and live virus. I had an appointment with a new provider today and they asked me to write down my former gastroenterologist for MS is such a complicated disease, isn’t?! It can be so frustrating to know something is wrong, yet, the Docters are so baffled! My first symptom was a slip and fall that caused me to break my Even though no two people experience MS in the same way, there are some symptoms, including vision problems and sensory disturbances, that may serve as early warning signs of the disease. The tests 5 years ago “ruled out” lupus, but I’ve had the same symptoms the whole time. After getting a positive ANA screen and ANA titer, I thought I was finally going to have some answers. 12/22: negative rapid test (planned to see family for Xmas) 12/23: woke up with a sore throat, negative rapid test in the afternoon 12/24: sore throat worsened and other symptoms appeared. My MS Specialist is not 100% sure I have MS and is ruling out other possible conditions (I'm particularly worried about Lyme Disease and the blood test can have false negatives). 11DPO is very early, hang in there! If this month isn’t it for you guys, I’d consider accurately tracking your ovulation via OPKs and I thought I had covid alsome, my spouse and my parents all caught it and we all tested negative. All of my tests came back normal, including a brain MRI. Symptoms doesn’t mean anything because there are a lot of different issues that give the same exact symptoms. No heartburn at all, but all of the sudden I have acid projected into my mouth. The MS neurologist determined she has had two relapses since December. I also get angular chelitis and was diagnosed with osteoarthritis in my spine. My G. Working with a doctor right now, but Google etc hasn't been able to help me too much with understanding a negative DsDNA (Sorry if this is the wrong place, new to all of this, feel free to delete if not appropriate) All negative. My allergist basically said that I’m not allergic so I can go ahead and eat I just had a 39 day cycle and was panicking because I had ALL the pregnancy symptoms, but a negative test. Like some girls crave greasy food during shark week while some may crave it while pregnant. Other symptoms she has had is trouble gripping with her hands, her cell phone is practically destroyed, and occasionally trouble with speaking and stumbling on words. I had an STD test done on November 30th, and tested positive for chlamydia but negative for HIV (4th Gen test). I really feel helpless now borderline suicidal as I am 100% sure I am infected but the tests have not yet picked it up. I have other symptoms that all showed up around the same time that don’t fit into the migraine symptoms. I was sent from doctor to doctor had MRIS and all sorts of test$$ to rule out MS, Lupus, etc etc. One of them came from flying to and from a state with low vaccination rates. But yes, there are other conditions that result in lesions and similar symptoms to MS. But doctors now see CIS as an early part of MS for many people. I was checked for MS and it was negative. Got the lab test right away when I first noticed symptoms on Tuesday morning. But I tested today at 5 weeks and it was negative. Luckily I was already getting an MRI for an unrelated condition. If you don't have symptoms but the virus is in your body and you will have symptoms, and yet a test says you're negative, the test im in a similar situation, i tested negative through blood, AND through multiple swabs from lesions, and three different doctors came in and looked at me and said it looks exactly like herpes. for me the symptoms are not something my primary and I feel comfortable attributing entirely to EDS or its comorbidities, and I’m too young to entirely rule out MS. CIS is a one-off event. keep thinking my period Most test won’t matter much time of day, though in super early detection it can matter. Not a common symptom. I suspect they didn’t do further testing because of the negative ANAs but that ended up being an incorrect route of diagnosis. Though it’s certainly possibly that the tests never picked up on your rising hcg levels (though rare). So I've been brushed off, and I'm starting to think maybe I am just going crazy. The most recent test was a lactose intolerance test that I insisted on because he wasn't taking me seriously about my observations over the past couple years. . So it's all bullshit, then This happened to me YESTERDAY! I was waiting 9 days for the result of my antibody blood test to come back, very confident I had H Pylori (all the symptoms are present, constant burning/gnawing feeling in stomach, nausea etc). I have taken STI tests and am waiting on results (am positive they're negative as I've only ever been with one guy since I was a teenager and we are still together and I w as cleared about 12 months ago). My symptoms were a burning upper abdomen (especially after fatty meals), fatty stools and heartburn. I think it Let me tell you my story In April I did the deed with someone whose status I did not know, however I had protection. You said you suffer from anxiety, I do too, and that can complicate things when it comes to your health. I know this won't be the case forever, but I don't want anyone else to look at me and think I'm gloating or that my point-in-time health is an indicator of future expectations. Of course it's an inaccurate reading, but these tests have always had inaccurate readings, and the point is that they haven't actually gotten worse. If not it’s definitely worth getting a good quality PCR test, available online. Not because of any sense of shyness or privacy, but because I'm someone that's diagnosed that is getting around just fine and is mostly asymptomatic. I’ve talked to my doctor about my fear/symptoms and she’s very sure I do not have MS but is willing to do a brain mri to put my mind at ease. My second pregnancy I had a If they were pregnancy symptoms, you’d have a positive test. " Truly, I hope you don't have MS, obviously. For your journal, track the dates, weather, level of depression, anxiety, and fatigue as well as a detailed report of what hurts and how severe. Anyone ever feel strong pregnancy symptoms but test negative (prior to expected period date)? I’m about 5-6 days before my expected period. I’ve been learning about somatic symptom disorder/mind body syndrome and it absolutely baffles me. Then lumbar puncture showed O bands. This period of time is called the MS prodome. MS since 2007 and all prior ANA tests were negative. I just took 3 different tests now (granted towards the end of the day) one blue dye and two pink dye - all came up negative. The thing about symptom spotting is that your period and early pregnancy symptoms can be the same. I'm finding that not all doctors are aware that fibro can cause neurologic symptoms in addition to pain. I have all these Thanks for the comments! I have major symptoms, rash, dry mouth with white tongue. The symptoms come and go for me, as well, which more often than not points to anxiety. It might be just low level of LH Tips: do it every morning, at the same time if necessary and dont drink water or consume anything at all before the test Wish all of us luck! Myself and just about everyone I know in Flagstaff is currently violently ill with some sort of respiratory illness and experiencing flu like symptoms: Sore throat, headache, fatigue, nausea, extreme tiredness, body aches, runny nose, congestion, wet chest cough, edit: lost of taste and smell ect with the symptoms lasting 1-2 weeks. I have spasticity in my legs where they want to stay locked straight out in front of me while I sleep so turning over in bed is difficult and ends up waking me up. My first ectopic, I had two negative tests before getting my Depending on where you are in the world STI clinics might test for MG. It started with heart attack scare (first ever) 60 days ago and odd symptoms have been popping up all on the left side. I thought it was the hormones I was taking. make sure it's cold (use a Stress, age, diet, exercise, can all change up your cycle. My neurologist think this might be neuropathy since nothing wrong in my MRI. But I've done it all before. All of these came back with indications of MS I understand where you’re coming from, before I was diagnosed with MS I convinced myself that I actually had ALS. They definitely COULD be pregnancy symptoms. It's a test you can perform yourself or with another person. Last test I've taken countless blood tests, colonoscopies, endoscopy, CT scan, stool samples and my specialist has only been able to diagnose me with general IBS. Didn't get diagnosed with Crohn's until 25 but suffered for so long before that. Came back negative. (I used two different brands as well) I could totally just be making up things in my head, but I feel like I’m having early pregnancy symptoms. My lymph nodes were swollen for about 2 weeks but have mostly gone some. Were you negative for ALL tests? I feel like a lot of people are negative on some of them, but always seem to have atleast one positive test or another. But it is amazing how much you can feel symptoms if you are looking for them. All of this started going away with B12 treatment. This means all MRI's show up clean with not lesions in the brain or spinal column. I have very severe health anxiety, and I think that I was so freaked out by all my weird symptoms that I decided that MS would not be severe enough. I’ve been so sick this week and have been to multiple doctors offices. But a person also had negative lumbar puncture; one iffy spot in the brain MRI and none in the spine; Fatigue is the worst if all my symptoms, that is a close tie with my memory. Right after my diagnosis, my mom found out about an MS specialty clinic and research center near us, and I feel like it made all the difference to go to a place like that. It’s certainly not what I thought when I I tested positive on a rapid test on Sunday. The muscles in my face grip my head as if it were the rocks Insomnia, having trouble waking up early (can never stick with a sleeping schedule), depression sometimes I think. My girlfriend and I who are both vaxxed and boosted started showing symptoms and got tested. Researchers treated mice with MS-like disease, termed experimental autoimmune encephalomyelitis or ‘EAE mice’, with a specialized messenger RNA (called m1Ψ mRNA) coding for MS disease-related autoantigens as an approach to prevent the immune system from attacking myelin and found they could suppress or reduce the severity of MS-like disease. I tested 5 times in total its been about 4 months since the possible exposure. Spinal tap showed a ton of OCBs. I was prescribed doxycycline for 7 days and upon completion my symptoms became less severe. Her doctor said it was herpes before the swab. I think your symptoms sound like they fall in line with possibly being MS, specially with the gradual progression like this over time. And all of my environmental allergies came back negative despite being miserable all year long with no resolution. I’ve actually joined a couple of fb groups for MS and it’s made me feel much better. He knows I have MS, so I am not sure why he doubts me. 12 months ago, I had a full autoimmune workup done because my PCP thought I had lupus. Ever since 16 having these supposed utis I notice when I drink lots of water it doesn't hurt to pee at all and I had an ultrasound In October. P. even if I can't always pronounce them!🙂) "Pruritis (itching) is a form of dysesthesias and may occur as a symptom of MS. Was ANA the only autoimmune marker they checked? Sorry if someone else asked this, I didn’t read through all the comments. I had negative pg tests until I was ~9 weeks along. Blood test was recently done for Neuromyelitis Optica. When my brain and c-spine came back clear it substantiated his belief & he didn’t provide any follow up recourse. I went today for another rapid test because my family is in denial and it came back negative for me. Second round the next day she tested positive I was negative. If the control line shows as normal, the test probably worked properly. All came back negative. You test again at 90 minutes to see if your glucose stays high or if it starts going down. Any symptoms you have while your tests are negative, are not pregnancy related. After sex a few weeks ago, I started having cloudy white discharge from my penis - I got tested again, came back negative (test was blood and urine only). No symptoms whatsoever. Retested a week later and it was positive. 95 days same test negative. You need to keep a log of all your symptoms (easy to just put it in a calendar on your phone,) video All my urine tests have come back completely clean, except for trace amounts of white blood cells. I test my urine at home with a test strip it says positive nitrite but negative leukocyte. All this was done while I waited for my next MRI with contrast, which showed a second spinal lesion, and MS was diagnosed. Even with repeat testing, there are false negatives—all tests on different days coming back negative. When I brought this symptom up to my Neuro she was like oh that’s not an MS symptom you need to see a hearing specialist because you’ve probably just lost some of your hearing. They're doing blood tests and all that too. They kept saying that the pathologists were wrong. Then I saw a neurologist at Columbia who diagnosed me with sfn based on my symptoms and said that a sweat glad biopsy was more accurate in my age group (in my 30s), but that it wasn't So far all of my at home tests have come back negative. currently 13 days late according to my period app, tested negative twice on pregnancy tests. Your symptoms are real and you know it. . Just dong forget to have sex even tho the results are negative. Again - all negative. I’ve met with 3 GPs and all suspect MS. Molecular tests have about the same accuracy as PCR tests but you can do I have all the symptoms, but tested negative . If your first ever symptom is now than AS is less likely. It sounds like so far the symptoms - whether MS or not - are slow going, so even though it sucks to wait all the way til December before seeing the neuro at least the symptoms are only moseying along and not At all. 512K subscribers in the AskDocs community. The second test was taken a few days after that. Your bladder may have somehow got irritated, maybe from a slight infection that you are now over, and is still freaking out. It started with my left foot being numb and then my right hand was constantly tingling and numb at the fingertips, brain fog, twitching. 4/6 family Had a second test done with immunoblot which was Indeterminate but Negative for bands The specialist referred by the NHS diagnosed me with MS saying the lesions are really tiny in my cervical spine and he found some bands in my AQP4 test. I’ve taken 3 at-home tests and one urine test in the office. The hug is essentially an assortment of pains and sensations around the muscles between your ribs. We all have different ideas about it and I love that, even the negative comments and downvotes. They could get back a negative DGA IgA and still wonder if they’re IgA deficient. I have mainly negative symptoms these days, my psychotic episodes have become a lot more spread out over the last couple of years. keep thinking my period After the spinal her MS profile came back positive with 9 O-Bands. Long Covid is a tricky disease that can cause a while host of strange or unusual symptoms that are hard to measure with standard medical tests, so be prepared for a potential disappointment Yeah, my neuro thinks I have MS and has started treatment. Then I decided to test one more time a little later when I still hadn’t got my period and it was positive that time. The issue is they never completely went away. You ovulated late or not at all yet, and that’s why your period is late. I've probably been psychotic for three weeks in total since the start of 2020. I definitely have an absorption problem. Follow up frequently and keep a diary of what is happening and how long it lasts. I was 5 It is so unbelievably frustrating to be having symptoms with tests continuing to come back negative. If you’re told you have CIS, it’s because, for the time being, you don’t meet all the tests for a diagnosis of MS. :/ In the meantime my symptoms all stayed the same. But just not the common ones lol. (Both are Some of my symptoms fit that of a migraine (numbness on one side mainly), but I have only ever had a migraine twice with the head pain. My CRP was at 16 (normal is < 3) but all of the usual tests show negative results. So as the title says, my period hasn’t come yet but I’ve take a few of pregnancy tests and they came out negative. You hear such horror stories. Started with a bladder infection off and on for a year. First thing in the morning i pee on my test stick. Also, pregnancy symptoms only show up with enough hcg to trigger a positive test. That’s where he tested positive including 2 more tests from a testing site. I bought cheaper one tho, not digital. We did the responsible thing and called in to work and have been isolating so far. I had to go with the absolute worst case scenario as far as a neurological disorder. Please note, the darkness of the test line does not represent the quantity of the virus antigen. Cousin with celiac. EDIT: I did the at home tests exactly I wasn’t diagnosed until I got Covid a second time and all my symptoms started to appear within a month. And then like today, feeling the symptoms of having a cold - which is tired , People with many MS symptoms can still have a clear MRI – making an official diagnosis difficult. Some few days later I felt really sick, nauseous, weak, no appetite, Tested the girl with whom the exposure was all tests were negative. Is neuropathy can be very similar to MS symptom? My friends think it might be anxiety but I don’t think so, cuz it attack my body after my work out and I’m mentally so happy sometimes. One of the tell-tale signs for me that convinced me that my symptoms were not psychosomatic, but rather potentially MS, was the Babinski test. Can you as well as another doctor I’ve spoken to at my husband’s job, believe it’s MS. Ophthalmologist did all the tests & MRI and said I had a demyelinating disease. Unfortunately the test that came back negative is shellfish which I have had anaphylaxis with and get hives from cross contact. Apparently people fly from all over the country to see this guy and his website boasts he’s treated over 11K patients. I’m only 36! My tinnitus seems to have gotten louder the last couple of years. They got a positive PCR test a few days later (this was just a few weeks ago). lack of facial expression I feel you - I’m having similar issues. A few days later during peak symptoms, I retested again, and the results came back positive. Total from start of symptoms to diagnosis, probably ~8-10 months. They were all My gf and I have had all the symptoms - she had a lot of congestion, a low grade fever, a dry cough, scratchy throat, brain fog, headache and fatigue. I missed three periods by the time I finally had a positive test. I have had 3 negative rapid tests and 2 negative PCR tests but I HAVE ALL THE SYMPTOMS. But since I got covid and also took the booster shot it has intensified big time. I even remember reading an article that said "No EBV, no MS". and it came back negative! I'm not sure what my first symptom was, because I had 20+ brain lesions at diagnosis, and my neurologist suspects that I'd had MS for quite a while. Chlamydia and Gonorrhoea unfortunately I had a highly risky contact, preliminary positive test, all imaginable symptoms and eventually they did not find any STD or HIV. I had to wait a month to go the neurologist with all of Most test won’t matter much time of day, though in super early detection it can matter. Even wanted to go test myself and, if the test came back negative, assume that what I have is not MS. Also, I do not have fevers at the same time each day, but I will get random spikes in temperature. The time between the event and the ECG and stress test was about a week so I had plenty of time to google all the possibilities. So I return to the clinic a second time. Yesterday I was burning for about 4 hours. Like non-stop tingeling ony left side especially after the booster shot. A lot of us are having symptoms that are MS-like. had all my typical pms symptoms and nothing. I was in the same boat as you back in April with all the classic symptoms but every test was negative. Other common symptoms of A test called the NMO-IgG blood test will be negative in people with MS but positive in 70 percent of people with Devic’s disease. Following MRIs and a diagnosis of MS, we were able to track symptoms back to almost a year prior to my vision A significant number of patients that go through the MS diagnostic process experience a disturbing pattern of misdiagnoses and dismissiveness from physicians. I have all of this as well, even before LC. If you were one of Diagnosing MS can be harder in people with unusual symptoms or progressive disease. For just about 30 seconds – but such a big mistake! A week later noticed mild burning when peeing (no discharge that I could see, though). I'd say a lot of the negative symptoms just come from apathy for me, at least the more chronic ones. There's lots of things that cause similar symptoms as MS and even can cause spots on MRIs that aren't the same as the MS type. I am now pregnant with my 2nd and because I had symptoms tested at what would have been 5 weeks, it was negative. Then, when I took a clear blue test on vacation: boom, dye stealer. So did everyone in my household. I had contact with someone who tested positive for COVID 4 days after our contact. All negative. I know I had a 1:160 titer and a negative autoimmune panel, but my symptoms are pretty classically autoimmune like severe sicca symptoms, joint pain, morning hand stiffness, rashes everywhere, hair loss, ulcers in nose and mouth, extreme fatigue and brain fog. Example- numbness will appear suddenly and last for ten straight days. I was skeptical but they did! I was so excited! No ms! I feel intimidated to post on here sometimes. I took a pregnancy test on Monday (1st response) and it came up negative, but after feeling so sick this morning I decided to go and buy more. I'm negative for STD and UTI. Had MRI done. All t3/4 tests are within normal range and I tested negative for TPO antibodies. But if you had unprotected sex less than two weeks before the tests, you will need to take additional tests. Most people seem generally well and living normal lives, the drugs are really great to control it in most cases. Most of those other things are treatable. I know antibodies takes months to form. Is it possible to still have COVID even if my rapid tests are negative? I’m fully vaxxed and had one booster last year. They're gonna think i'm a hypercondriact or something. I feel you - I’m having similar issues. You test yourself at 120 minutes to see if your body has managed to clear out most of the glucose from the meal. 45 days 4th generation test negative took that one at the ER. I went to the doctor he checked my penis didn’t see anything. 2016-2023 10 panel std test IGG test always negative. 5 weeks before missing a period. I had all those symptoms and more. The next day I got a third test that is negative. I am I took a PCR test the day that I had symptoms and I tested negative. dsp ssosy oaza xmcrh sqhi iosatz urg qpypj heevyt tfbnst
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